This website facilitates the generation of personalized emergency letters for specific groups of Inherited Metabolic Disorders. We encourage patients and doctors to work together to use this tool, in order to help the patient to prevent a medical emergency. We are constantly working to improve this website, add new languages and expertcentres from all over the world. We want to epand the number of diseases which can use a personalized letter. The Letter for UCD is at the moment only available in Dutch, since we are experimenting until a more broader outroll will be planned. Use the languageswitcher (flag) to find other available languages
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Here you can generate a personalized emergencyletter.
We recommend that you keep the patient's accurate weight, disease name and date of birth at hand. We also recommend (especially for children) that you renew this letter every 6 months. Doctors and patients are encouraged to jointly fill the form to ensure that the information in the emergency letter is accurate.
